‘Dementia link to sudden low blood pressure and dizziness’
October 13, 2024
THE Sun is urging readers to support Jeans For Genes Day — which raises cash to help families and support groups caring for children with genetic disorders.
Do YOUR bit by wearing denim to work this Friday and making a donation. David Cameron’s son Ivan died at just six after suffering from Ohtahara syndrome. Here the PM explains why he backs Jeans For Genes — and why you should too…
NEXT Friday is Jeans for Genes Day, when people across the country will go to work wearing jeans to raise money for families affected by genetic disorders.
On their own, some disorders affect just a handful of children born in the UK.
But if you add them all together there are hundreds of thousands of brave young people and their families who are fighting rare conditions that very often do not have a cure.
For me, this is personal. I want to do everything I can to help children who are born with some of the least common and hardest to treat disorders that we know of.
Some of these conditions are diagnosed at birth but tragically some don’t show up until later in life.
We need to support those families whose lives are often changed immeasurably overnight and never stop suffering the consequences.
We are working hard to make the UK the first country in the world to unlock the genetic make-up of up to 100,000 patients over three to five years.
I want our experts — who are the best in the world at this — to look at the DNA make-up of people and diseases so we can unlock the way that they harm the body and target the way doctors treat them better than ever before.
As part of this project, people who have rare diseases will in future get personalised treatment.
They will get the drugs we know will work best with their own immune system to attack that condition.
But we can always do more and that’s why Jeans for Genes is so important.
I’m really pleased The Sun has thrown its weight behind the campaign and would urge all Sun readers to put their jeans on next Friday and help us raise money for this important cause.
GENETIC disorders and the health problems they cause are the biggest killer of children under 14 in Britain.
One in 25 kids in the UK has a genetic disorder — that’s more than 30,000 babies born a year.
There are more than 6,000 recognised genetic conditions and many more that have yet to be given a name.
Some disorders like RCDP, a form of dwarfism, have only four known sufferers in the whole country.
Some are far more well known, like Cystic Fibrosis, which has around 9,000 sufferers in the UK — one in every 2,500 babies born.
Parents of a child with special needs are twice as likely to split up than parents of a “normal” child.
Every person has about 25,000 genes that make up their body and pass traits to their offspring.
Just one can change a child’s life forever.
Source The Sun